Almost all of our research studies have individual research advisory groups which include users and carers, and often also practitioners, to ensure that we can gain from their expertise in ways that are specific to the research questions being investigated. Examples include:
MODEM: Costs and outcomes of dementia
Our MODEM study's Research Involvement Manager is a carer of her partner who has dementia. She was involved in the proposal to ESRC which lead to the establishment of the MODEM project, of which she is a co-investigator. The study has a specific Reference Group of Users and Carers.
Public Involvement Implementation Group (PIIG)
We benefit from the expertise of the PII Group set up by the DHSC-funded Quality and Outcomes of person-centre Research Unit, of which we are a founding partner.
STRiDE: Strengthening responses to dementia in developing countries
The STRiDE study is working with Alzheimer's associations in seven developing countries as well as Dementia Alliance International, a collaboration of like-minded individuals diagnosed with dementia.
The role of social care in supporting young adult carers
Our study on young adult carers includes a Young Adult Carer Research Group which advises on all aspects of the study.
NIHR School for Social Care Research
The NIHR School for Social Care Research established it’s User, Carer, Practitioner Reference Group in 2009 to hear and learn from the experiences, expectations and aspirations of people's real world experience of adult social care.
Many of our research projects will also involve people who use services, carers or practitioners in other ways.